More than 5.7 million people are living with Alzheimer’s disease in the United States. For every person diagnosed, there are another three who take on unpaid caregiving roles. That accounts for another 16 million people who must contend with the disease daily. Last year alone, Alzheimer’s and other dementias cost the U.S. $305 billion in health care costs. Looking at those numbers highlights the urgent need for action. The Alzheimer’s Association of Greater Missouri is dedicated to tackling the issue through education, advocacy, research and patient services.
“Alzheimer’s is the sixth leading cause of death in the country, and it’s a disease that currently has no prevention, treatment or cure,” says Brenda Stewart, chief development officer for the Alzheimer’s Association of Greater Missouri. “But we are on the cusp of many exciting advancements.” The national nonprofit is the largest private funder of research for the disease in the world. Through its advocacy efforts, it has helped federal funding reach $3.1 billion. Some of that money has gone to important research initiatives right here in St. Louis.
The organization also offers an array of critical services to families dealing with the disease. The need for this support has only grown during the COVID-19 pandemic. Not only are dementia patients at increased risk for the virus, but caregivers also are facing new difficulties. “Families need our help now more than ever,” Stewart says. To safely provide assistance, The Alzheimer’s Association has transitioned its services into a virtual format. This includes care consultations, support groups and educational classes on a wide range of topics. The nonprofit also has a 24-hour helpline (800.272.3900) to answer questions and provide assistance whenever needed.
The association’s second largest fundraiser is the annual Affair to Remember Gala. With presenting sponsors Emerson and Edward Jones, this year’s event is themed ‘Magical Memories’ and will be held virtually May 14. “We are grateful for the opportunity to celebrate our work and thank our donors, and with the virtual format, we can share the evening with so many more people,” Stewart says. The event is free, and guests can choose to purchase a VIP option featuring a party box delivered to their home. Along with a program and auction, ‘Magical Memories’ will feature magician and St. Louis native Justin Willman, creator and star of Magic for Humans on Netflix.
The entertainer has a personal connection to the cause. His mother, Sonja, a local interior designer, was diagnosed with Alzheimer’s 10 years ago and passed away last May. “The experience shaped my family in many earth-shattering ways,” he notes. “Alzheimer’s is similar to a leak in the roof. It starts with a puddle that you just can walk around, but gradually, the rain keeps coming, and you find yourself wading through a flooded house. It doesn’t happen overnight, but you slowly are robbed of a person you treasure.”
Along with his father, Robert, and sister, Ashley Obradovits, Willman now is dedicated to helping raise awareness about the disease. He also is grateful for the work of the Alzheimer’s Association. “My goal is to find a cure within my lifetime, and thanks to science and advocacy, it’s attainable,” he says. “My mother lost her battle, but that doesn’t mean we are going to stop fighting for everyone who has to endure this darkness. With ‘Magical Memories,’ I hope I can bring people a little light and levity and help them feel less alone.”
The Alzheimer’s Association of Greater Missouri provides care and support for those affected by the disease and other forms of dementia. Its Magical Memories gala will be held virtually May 14. Pictured on the cover: Justin Willman. For more information or to register, call 314.801.0402 or visit alz.org/greatermissouri.
Cover design by Julie Streiler
Photos courtesy of The Alzheimer’s Association of Greater Missouri
